I’m a disabled mum trying to make the best of my life while my kids grow up. I was taken down on January 1st 2016 with a rare neurological auto-immune condition called Stiff Person Syndrome plus PERM. It affects only one in a million world wide.

I am now only able to get around in a wheelchair. I can walk a few steps around my home but  each step is painful, I’m unbalanced and prone to falling and it’s really too dangerous for me to walk outside.

I wanted to write down my thoughts and feelings, and I think poetry helps me express myself best. I’m only just starting out so I’m not sure where this journey will take me.

The stitches are my crochet, which I love. I’ll be sharing some of my stitches along with my words.


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